Cystinosis in adult and adolescent patients: Recommendations for the comprehensive care of cystinosis

Consensus document

Cistinosis en pacientes adolescentes y adultos: recomendaciones para la atención integralde la cistinosis

Gema Aricetaa,

Corresponding author

gariceta@vhebron.net
gariceta@bilbaodigital.net

Corresponding author: Gema Ariceta, Servicio de Nefrología Pediátrica. Hospital Universitari Vall d’Hebron. Grupo Renaltube. Redinren, Pg/ Vall d’Hebron 119-129, 08034 Barcelona, Spain. Tel.: 934893082.

, Juan Antonio Camachob, Matilde Fernández-Obispoc, Aurora Fernández-Polod, Josep Gameze, Judit García-Villoriaf, Enrique Lara Monteczumac, Pere Leyesg, Nieves Martín-Beguéh, Federico Oppenheimeri, Manel Perellój, Guillem Pintos Morellk, Roser Torral, Anna Vila Santandreub, Ana Güellm, Grupo T-CiS.bcnn

a Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Grupo Renaltube, Redinren, Barcelona, Spain

b Servicio de Nefrología Pediátrica, Hospital San Joan de Déu, Barcelona, Spain

c Servicio de Nefrología Pediátrica, Hospital Universitari Vall d’Hebron, Barcelona, Spain

d Servicio de Farmacia, Hospital Universitari Vall d’Hebron, Barcelona, Spain

e Servicio de Neurología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

f Servicio Bioquímica y Genética Molecular. Sección de Errores Congénitos del Metabolismo. Hospital Universitari Clínic. IDIBAPS y CIBERER, Barcelona, Spain

g Servicio de Endocrinología y Nutrición, Hospital Universitari Clínic, Barcelona, Spain

h Servicio de Oftalmología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

i Servicio de Nefrología y Trasplante Renal, Hospital Universitari Clínic, Barcelona, Spain

j Servicio de Nefrología, Hospital Universitari Vall d’Hebron, Barcelona, Spain

k Unidad de Nefrología Pediátrica, Hospital Universitari Germans Trias i Pujol, Badalona, Barcelona, Spain

l Servicio de Nefrología, Fundació Puigvert, AIRG-E, Redinren, Barcelona, Spain

m Product affairs, Orphan Europe - Recordati Group, Spain

n TCiS.bcn: Working group for multidisciplinary care and transition from paediatric to adult units in cystinosis, Barcelona, Spain

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Article information

ISSN: 20132514
Original language: English

DOI:10.1016/j.nefroe.2015.06.010

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